Tahlequah Daily Press

Get the scoop!

November 29, 2012

Loving a child on the fringe

(Continued)

PARIS —

Leaving aside the question of whether one can measure happiness in coffee spoons and, more troublingly, compare the real happiness of an existing child to the potential happiness of a nonexisting child, it is a cliché of developmental psychology that kids with disabilities like Down syndrome often outstrip their peers in joie de vivre. Something about their trust, tenacity and tenderness — as well as their often uninhibited engagement with other people — seems to equip them for lives that are not darker than the lives of sensitive intellectuals but brighter.

Cut to: Paris, fall 2012. I am sitting next to my cherry-lipped, porcelain-skinned daughter, now 4 years old. I step out of the medical transport van that has ferried us home from her preschool and heave her onto the sidewalk. She giggles and extends two fingers to stroke my cheek. Before the driver can pull away from the curb, I gather her against my heart, draw back a few inches, smile in wonder into her radiant smile, and kiss her face and hair and temples as holiday shoppers stop and stare.

Eurydice's and my walks through town are punctuated by spontaneous remakes of Doisneau's "The Kiss" — except with toddler and mother switched in for boy and girl. Not that things are easy: Before we've covered the 250 yards between the door of the medical van and our apartment building, Eurydice will have darted into traffic three times. Like a few other kids with Down syndrome, she is inhabited by an irrepressible compulsion to break out and explore, which combined with her perfect fearlessness causes me a great deal more stress than many of the better-known problems of Down syndrome. Walking with my child is like trying to corral a kitten. You hold her by the scruff of the neck, or you lose her. Once the French fire brigade returned her when she made off from a playground — I had turned my head for an instant; she'd gone six blocks in two minutes.

Text Only
Get the scoop!
Poll

Do you believe school administrators and college presidents in Oklahoma are paid too much?

Strongly agree.
Somewhat agree.
Somewhat disagree.
Strongly disagree.
Undecided.
     View Results
Tahlequah Daily Press Twitter
Follow us on twitter
AP Video
13 Struck by Lightning on Calif. Beach Baseball Hall of Famers Inducted Israel, Hamas Trade Fire Despite Truce in Gaza Italy's Nibali Set to Win First Tour De France Raw: Shipwrecked Concordia Completes Last Voyage Raw: Sea Turtle Hatchlings Emerge From Nest Raw: Massive Dust Storm Covers Phoenix 12-hour Cease-fire in Gaza Fighting Begins Raw: Bolivian Dancers Attempt to Break Record Raw: Israel, Palestine Supporters Rally in US Raw: Air Algerie Flight 5017 Wreckage Virginia Governor Tours Tornado Aftermath Judge Faces Heat Over Offer to Help Migrant Kids Kangaroo Goes Missing in Oklahoma More M17 Bodies Return, Sanctions on Russia Grow Raw: Deadly Tornado Hits Virginia Campground Ohio State Marching Band Chief Fired After Probe Raw: Big Rig Stuck in Illinois Swamp
Stocks